Original
Demora diagnóstica en enfermedades raras: entre el miedo y la resiliencia
Diagnostic delay in rare diseases: between fear and resilience
Lucía Páramo-Rodrígueza, Clara Cavero-Carbonella,
, Sandra Guardiola-Vilarroigb, Aurora López-Masideb, M. Eugenia González Sanjuánc, Óscar Zurriagaa,b,d,e
Corresponding author
a Unidad Mixta de Investigación en Enfermedades Raras, Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana-Universitat de València (FISABIO-UVEG), Valencia, España
b Dirección General de Salud Pública y Adicciones, Generalitat Valenciana, Valencia, España
c Departamento de Sociología y Antropología Social, Universitat de València, Valencia, España
d Departamento de Medicina Preventiva y Salud Pública, Ciencias de la Alimentación, Toxicología y Medicina Legal, Universitat de València, Valencia, España
e CIBER de Epidemiología y Salud Pública (CIBERESP), España
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