Original
Demora diagnóstica en enfermedades raras: entre el miedo y la resiliencia
Diagnostic delay in rare diseases: between fear and resilience
Lucía Páramo-Rodrígueza, Clara Cavero-Carbonella,
, Sandra Guardiola-Vilarroigb, Aurora López-Masideb, M. Eugenia González Sanjuánc, Óscar Zurriagaa,b,d,e
Corresponding author
a Unidad Mixta de Investigación en Enfermedades Raras, Fundación para el Fomento de la Investigación Sanitaria y Biomédica de la Comunitat Valenciana-Universitat de València (FISABIO-UVEG), Valencia, España
b Dirección General de Salud Pública y Adicciones, Generalitat Valenciana, Valencia, España
c Departamento de Sociología y Antropología Social, Universitat de València, Valencia, España
d Departamento de Medicina Preventiva y Salud Pública, Ciencias de la Alimentación, Toxicología y Medicina Legal, Universitat de València, Valencia, España
e CIBER de Epidemiología y Salud Pública (CIBERESP), España
Read
5725
Timeswas read the article
1254
Total PDF
4471
Total HTML
| Year/Month | Html | Total | |
|---|---|---|---|
| 2025 May | 49 | 3 | 52 |
| 2025 April | 250 | 63 | 313 |
| 2025 March | 188 | 43 | 231 |
| 2025 February | 210 | 63 | 273 |
| 2025 January | 143 | 35 | 178 |
| 2024 December | 144 | 46 | 190 |
| 2024 November | 152 | 55 | 207 |
| 2024 October | 143 | 43 | 186 |
| 2024 September | 149 | 34 | 183 |
| 2024 August | 180 | 41 | 221 |
| 2024 July | 135 | 40 | 175 |
| 2024 June | 194 | 32 | 226 |
| 2024 May | 147 | 37 | 184 |
| 2024 April | 115 | 36 | 151 |
| 2024 March | 79 | 36 | 115 |
| 2024 February | 84 | 57 | 141 |
| 2024 January | 157 | 39 | 196 |
| 2023 December | 115 | 46 | 161 |
| 2023 November | 254 | 71 | 325 |
| 2023 October | 180 | 73 | 253 |
| 2023 September | 120 | 51 | 171 |
| 2023 August | 101 | 27 | 128 |
| 2023 July | 141 | 39 | 180 |
| 2023 June | 160 | 44 | 204 |
| 2023 May | 105 | 44 | 149 |
| 2023 April | 111 | 47 | 158 |
| 2023 March | 187 | 70 | 257 |
| 2023 February | 149 | 39 | 188 |
| 2023 January | 236 | 0 | 236 |
| 2022 December | 93 | 0 | 93 |
Show all
